How to Measure Informed Choice? Results From the German Mammography Screening Programme

  • M. Reder
  • E.-M. Berens
  • P. Kolip
  • J.Spallek


Background: Informed choice in mammography screening has long been an ethical requirement with poor implementation. The objective of this study was (1) to develop a questionnaire to assess informed choice in the German mammography screening programme (MSP) and (2) to determine whether women invited to the MSP for the first time make informed choices. Methods: This study was designed as a cross-sectional study with 3-month follow-up on self-reported behaviour. 2084 women from Westfalen-Lippe aged 50 answered the questionnaire in 2013/2014. The primary outcome was informed choice. Secondary outcomes were the components of informed choice (intention, knowledge, attitude) and components of the reasoned action approach. Findings: 23.7% made an informed, 58.0% a partly uninformed and 18.3% a completely uninformed choice. Accordingly, knowledge was low (M=2.8 SD=1.4, possible scores 0 to 8). Attitude was favourable (M=1.1, SD=0.7, possible scores -2 to 2) reflected in 71.1% having a positive intention. Discussion: This study showed that the majority of women in our study did not make an informed choice. Developing tools to improve informed choice in the MSP is therefore imperative.
Oral presentations